Statement of
Penny L. Schuckers, MSW
Chief
Eastern Blind Rehabilitation Center
July 22, 2004
Mr. Chairman and Members of the Committee:
It is an honor to speak with you today in my role as Chief of the
Eastern Blind Rehabilitation Center, which is housed at the West Haven
Campus of the Connecticut VA Healthcare System.
In 1969, the Eastern Blind Rehabilitation Center (EBRC) became the
second VA Blind Center to serve blinded veterans. Today, our 34-bed EBRC
serves 16 states and 6 VISNs in its catchment area. We have 27 on-board
blind rehabilitation instructors, many of them cross-trained, and
full-time nursing coverage. We reorganized the EBRC eight years ago from
skill-specific teams into interdisciplinary treatment teams to improve
continuity of care and better utilize time and staff. Last year we
served 258 inpatients at the EBRC.
We have three Blind Rehabilitation Outpatient Specialists (BROS)
stationed in Boston, West Haven, and Baltimore, who provide local
outpatient blind rehabilitation training to veterans in our catchment
area. Our Regional Consultant coordinates and oversees service delivery
of our 42 full and part-time Visual Impairment Service Team (VIST)
Coordinators, who identify blinded veterans and serve as case managers
for this population. We pride ourselves in our dedicated staff, strong
programs, and strong leadership in providing excellence of care for
blinded veterans, in the most appropriate modes possible. Last week at
the EBRC, we celebrated our 35th anniversary with some of those
veterans. Our history has been one of steady improvements and
enhancements to services for vision-impaired veterans.
Through early 1970s, the EBRC served a veteran population that included
many young, totally blinded Vietnam veterans. Low Vision programs,
electronic aids, and computers were all but non-existent or
experimental. The standard length of stay was four months. Mobility,
Braille, adjustment, and pre-vocational counseling took the bulk of the
time. By the late 1970’s, the EBRC veteran population, technology, and
blind rehabilitation began to change. Vietnam veterans returned for
refresher courses and to attempt state-of-the-art technology, such as
the now defunct Sonic Guide for mobility. Low Vision used the first
Closed Circuit Televisions (CCTVs). Our researcher worked with a private
inventor named Kurzweil to develop an experimental, room-sized machine,
which recognized and spoke written text. Its miniaturized descendents
reside in most of today’s screen-reading and voice-activated computer
technology. In the 1980s, more specialized optical aids were available
in Low Vision, and training increased. Braille was taught for labeling,
not reading, and new cassette recorders were used for note taking.
In the 1990s, our Mobility program modified techniques for wheelchair
and mobility-challenged veterans, and our Living Skills program
increased touch-typing instruction. This better prepared the many
veterans who wanted to continue on to the Computer Access Training (CAT)
Program. The average age of our blinded veterans continued to increase,
and more female veterans appeared. Most were blinded due to diseases
related to aging, such as diabetic retinopathy. More had severe physical
impairments and many exhibited decreased memory or cognitive
functioning. We increased nursing staff to ensure 24/7 skilled coverage.
Electronic or computerized aids for the blind increased, and the EBRC
began to evaluate and prescribe the most promising of the devices. By
1993, we created a department devoted solely to this specialty.
In 2000, the EBRC became the first Blind Center in the United States to
receive full accreditation from the Council for Accreditation of
Rehabilitation Facilities (CARF). We also earned full accreditation,
with no recommendations, again in 2003.
In the past three years, we have reduced our average daily cost by
almost $2,000. Our average length of stay at the EBRC is five weeks, and
our wait list is now down to an average of 125 days for our Regular
Program. Through a series of initiatives, including out-sourcing CAT for
qualified applicants, the wait time for admission for our CAT Program
has been reduced from 443 days two years ago to its current 149 days.
Our CAT staff is evaluating a digital recorder that will record
instruction and download it directly into a computer. One of our CAT
staff is experimenting with a technique to telecommute with a student;
the potential is great for future instruction of veterans who might stay
at home for this training. The same student has also learned to
communicate with his daughter living in Israel by using voice e-mail on
his adapted computer.
In the past three years, the EBRC has experienced an unprecedented shift
in its veteran population. Never before have we experienced the age
disparity of our inpatient population. Many veterans are now in their
80’s and 90’s, but we are also seeing the youngest in 25 years, many of
them recent active duty veterans blinded by unusual accidental causes,
rather than actual military conflict. As a result, our inpatient
programs have again become more individualized, and our lengths of stay
have varied depending on patient needs. Our staff is challenged to
provide rehabilitation training to both old and young veterans, who have
extremely differing needs and abilities.
We have refocused our local outpatient treatment to improve service
delivery. In 2001, the EBRC created an Outpatient Treatment Team, which
included the VIST Coordinator and BROS, and added a staff Optometrist
and Chief. We shortened outpatient waits and treatment length by
assigning a Low Vision specialist to patients who only needed Low Vision
evaluation and training. Some veterans are tracked directly into
outpatient Low Vision training, some into more expanded BROS training to
obviate the need for inpatient training, and some for admission into the
EBRC. This has improved wait times and case closure for the BROS
veterans. We also now “fast-track” some veterans in an intense, one-week
training curriculum to expedite training in mobility, low vision, and
rehabilitation. Currently the team is exploring a 1-2 week modified day
program that would allow veterans to participate in the group atmosphere
of the inpatient program, which often facilitates adjustment skills and
improved morale.
We are also proud of our participation in the initial development and
follow-up of research projects conducted by the Atlanta Rehabilitation
Research and Development Department. These two historic projects
developed criteria to evaluate the effectiveness of blind rehabilitation
training and to create benchmarks in various VA and non-VA settings.
Beginning in 1997, the EBRC began using these criteria to evaluate our
student population and our program in three major areas: demographics,
patient satisfaction, and change in functional independence following
rehabilitation. One example of changes we have made from application of
the criteria involves a modification to our training curriculum based on
results of the Atlanta Functional Change Scores. Seeing a drop in our
scores in Low Vision tasks in 1999, the EBRC modified and increased its
training in mid-distance viewing tasks, and in 2001, ambitiously began a
staff cross-training initiative in Low Vision where staffing and
training hours were inadequate. Our scores in these areas improved
noticeably. Our cross-training now has expanded to other skill areas. We
now have five cross-trained staff in Low Vision, five in Manual Skills,
and two in Living Skills, as well as five staff who have dual degrees in
Orientation and Mobility, and Blind Rehabilitation Teaching.
Quality, veteran choice, continuity of care, and increased independence
for each blinded veteran continue to be our foundation and guide our
future. At the EBRC, we will continue to explore and evaluate training
alternatives and best practices for our ever-changing veteran
population. Mr. Chairman, this concludes my statement, and I will now be
happy to answer any questions you might have.
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