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Testimony   of Paul Sullivan

Executive Director

Before the House Veterans’ Affairs Committee

Subcommittee on Benefits

October 26, 1999

I. Introduction

Chairman, members of the subcommittee, on behalf of the 60 organizations represented by the National Gulf War Resource Center, I appreciate the opportunity to testify again regarding Department of Veterans Affairs (VA) benefits available to Gulf War veterans. In the audience is Charles Sheehan-Miles, our National Secretary, who testified before your subcommittee in 1996.

The work of this subcommittee remains critical.  The NGWRC notes with concern that more than 43 percent of Gulf War veterans eligible for VA benefits are seeking healthcare, an unusually high percentage given the excellent health we enjoyed in 1990.  Almost one-third of us are ill enough to seek compensation.  The NGWRC believes this is an alarmingly high rate worthy of the immediate attention of this subcommittee.

Here are two other highly distressing statistics: first, 72 percent of the claims for undiagnosed illnesses were denied; and, second, 72 percent of the claims for undiagnosed illnesses to reach the Board of Veterans Appeals (BVA) were either granted or remanded.  These figures show a very serious error rate at the regional office level.  Congress did not intend these results, and the NGWRC finds these results unacceptable.

Sadly, there are more than 130,000 U.S. Gulf War veterans receiving VA compensation, and at least 9,000 confirmed veteran deaths.  There are also more than one million military and civilian deaths in Iraq as a result of the continuing nine-year Gulf War.

We wish to thank VA Undersecretary of Benefits Joe Thompson for inviting the NGWRC to his quarterly briefings on VA claims.  In general, we support his efforts to streamline VA claims using computers, the Internet, and improved training.

II. VA Gulf War Statistics as of July 15, 1999

4,028,915 Gulf War “era” veterans, August 2, 1990 until present

1,131,859 Gulf War “theater” veterans, August 2, 1990 until present

696,621 Gulf War “conflict” veterans, August 2, 1990 until July 31, 1991

579,210 “conflict” veterans eligible for VA benefits

251,000 “conflict” veterans sought VA healthcare – 43% of those eligible

182,004 “conflict” veterans filed claims against the VA – 31% of those eligible

-            132,891 with one or more S/C conditions – 73% of claims filed

-           89,016 claims approved, 10% or more compensation – 49% of claims filed

-           3,694 claims receiving pension (with & w/o S/C) – 2% of claims filed

-           40,524 claims approved, but zero compensation – 22% of claims filed

-           29,510 claims pending – 16% of claims filed

-           19,260 claims denied in full – 11% of claims filed

10,403 Undiagnosed illnesses claims (PL 103-446)

-           2,566 approved, 10% or more compensation – 25%

-           318 approved, but zero compensation – 3%

-           7,519 denied – 72%

III. VA Narrowly Interprets PL 103-446

The undiagnosed illnesses benefits law, PL 103-446, allows for the VA to compensate veterans with undiagnosed or not clearly defined illnesses, many possibly associated with Gulf War toxic exposures. Last year, as part of PL 105-368, Congress extended benefits for undiagnosed conditions through December 31, 2001.

However, according to figures provided by the VA, as of June 1999, only 25 percent of the claimants for undiagnosed illnesses received compensation.  The high denial rate is unconscionable, as it penalizes those with the most difficult to diagnose medical conditions.  It is unreasonable that three-quarters of the claims were rejected.  Clearly, this contrasts sharply with the intent of Congress in 1994 when this law was passed.

The NGWRC believes the VA narrowly interprets PL 103-446, to the detriment of Gulf War veterans who have earned service-connected benefits, because in most cases, medical treatment is contingent upon a veteran receiving VA service-connected status for each condition needing treatment.  In most cases, the denial of a claim results in a denial of medical care and endless appeals.  The NGWRC believes the VA does this by:

1.            Denying claims for not “clearly defined” conditions, such as chronic fatigue, multiple chemical sensitivity, amyotrophic lateral sclerosis (a motor neuron disease known as Lou Gehrig’s disease or ALS), and fibromyalgia, to name a few.  Because these diagnoses are not well defined, they may fall within the standards of evidence needed to grant an undiagnosed or not “clearly defined” illnesses claim.

2.            Denying claims for undiagnosed illnesses when a doctor is unable to diagnose the veteran.  This has happened even when the veteran has verified and objective symptoms, such as unusual laboratory results.

3.            Denying claims possibly misdiagnosed as limited to only psychological or psychiatric issues.  This may result from an unfamiliarity of various Gulf War toxic exposures by VA medical professionals as well as miscommunication regarding symptoms between the veteran and the VA physician performing the Compensation and Pension (C&P) exam.  While some veterans do have psychological disabilities, there are some toxic exposures that result in neurological damage that may appear similar.

4.         Failing in the duty to assist veterans by developing their claims, as we believe is incumbent upon the VA.  We understand there is a backlog when requesting military records, from six months to twelve months or longer.  The NGWRC believes the VA must go the extra mile to assist Gulf War veterans with these exceptionally difficult undiagnosed illnesses claims, as Congress intended.  We note that undeveloped claims occur most frequently when the veteran has no advocate.

Because of the shortfalls, 72 percent of claims for undiagnosed illnesses benefits are denied at the regional office level – then 72 percent are allowed or remanded at the BVA.  As a result of these findings, the NGWRC asks Congress to ask the VA to readjudicate every undiagnosed illnesses claim that was denied in whole or in part.

Claims made by Gulf War veterans are 28 percent more likely to be denied when compared to those who served at the same time but not in the conflict.  Those in the conflict are 39 percent more likely to receive VA compensation than those who did not deploy - a clear indication of significant medical event(s) during Desert Storm.

The NGWRC agrees with Chairman Bob Stump's letter to VA Secretary Togo West dated June 3, 1998.  The VA must adopt more uniform standards to adjudicate Gulf War claims, with the clear note that the VA must find, when there is reasonable doubt, in favor of the veteran.

The NGWRC believes that many Gulf War claims are under-rated, with many veterans receiving a ten percent rating when a more proper may adjudication call for a higher rating.  These lower ratings result in many more appeals, further clogging the VA.

The NGWRC thanks Congress for passing the “Persian Gulf War Veterans Act of 1998,” PL 105-277, and we urge the House Veterans Affairs Committee to hold hearings on the implementation of this landmark benefits legislation.

The NGWRC believes hearings are vital, as many new benefits may become available as the National Academy of Sciences releases reports on illnesses the NAS finds may be associated with more than 30 toxins, and oversight may be needed.

Until the NAS completes their work, which is expected to last ten years or more, undiagnosed illnesses benefits available under PL 103-446 should have an open-ended presumptive period.  Ending undiagnosed illnesses benefits before the NAS completes their task would be premature and possibly deny benefits to tens of thousands of deserving Gulf War veterans.

IV. NGWRC Proposals

There are three main players in every claim brought by a veteran against the VA: the veteran, the veteran's advocate, and the VA.  Each must be as trained or as informed as is possible in order for the system to work properly.

Our mutual goal should be for veterans to submit a properly prepared claim, especially for undiagnosed illnesses, with the assistance of a veterans service representative, so the VA may promptly and accurately adjudicate the claim.  Then the veteran may obtain healthcare, our main mission, plus compensation, as needed.

The NGWRC believes Morton v. West (1999) does not apply to undiagnosed illnesses claims because such claims do not require a diagnosis, and because the law clearly states that a veteran’s claim of symptoms represents a well-grounded claim.  The NGWRC believes the VA, in order to avoid a completely adversarial system, must have a strong duty to assist veterans with filing claims.

This difference in Gulf War claims requires specific training for VA adjudicators and veterans service representatives as well as outreach to Gulf War veterans.  With training, the number of initial mistakes is reduced, thus lowering the number of improper denials and appeals, and possibly shrinking the huge backlog of claims at the VA

A.        GAO Investigation of Gulf War Claims

Toward that end, the NGWRC proposes Congress task the General Accounting Office (GAO) to investigate the apparent discrepancy between the intent of Congress and our view of the less than optimal implementation of PL 103-446.  Congress may want to ask the GAO to suggest ways to improve the undiagnosed illnesses claims process.  Plus, if solid, reliable statistics are developed, this may serve as a baseline to determine the effectiveness, if any, of any proposed training program that may be implemented.

Such a probe may want to focus on:

a.                  the reasons for denials cited by VA (such as presumptive period, not well grounded, failure to assist or develop, or having an existing diagnosis)

b.                  the number of each type of condition claimed (such as “x” number  of diagnosed conditions and “y” number of undiagnosed conditions)

c.                  variables within the veterans population (such as service branch, gender, age, race, rank, deployment dates, and deployment locations, and the number and type of diagnosed and undiagnosed issues in each claim)

d.                  the impact of VSOs on the claim (such as the approval, denial, appeal, and pending claims rates with and without VSO representation)

e.                  the level of development (such as did a VSO, the VA, or both assist the veteran with development)

f.                    the number of VA personnel fully qualified to adjudicate such claims (such as determining if there are enough, and do Gulf War claims require additional time)

B.         VA and VSO Training & Gulf War Veteran Outreach

The NGWRC believes a current VA training manual, A Guide to Gulf War Veterans’ Health, published in April 1998, overemphasizes stress, neglects toxic exposure research, and neglects claim verification reporting procedures for undiagnosed conditions.  The NGWRC has confirmed several incidents where VA physicians, many involved with Gulf War Registries or C&P exams, who are unfamiliar with the VA’s Guide.

Further, the NGWRC proposes the VA undertake to develop and implement, within the next year, a new training program with the cooperation of VSOs and Gulf War veterans.

As part of reaching out to veterans, the NGWRC began distributing more than 20,500 free copies of our Guide for Gulf War Illnesses in 1996. Our on-line version has been visited more than 200,000 times.

The VA, in addition to their occasional newsletter, should consider outreach at the local level, such as with the Persian Gulf Family Support Program that expired in 1994, as there appears to be a ‘disconnect’ between policies originating from the VA Central Office and local regional offices.

To the best of our limited ability, the NGWRC performs outreach, including training for veterans representatives working for the Vietnam Veterans of America.  Veterans, VSOs, legislators, the public, and the press find our Guide highly informative and very helpful.

The first piece of advice given to veterans in our Guide is that veterans should seek help from a professional veterans advocate.  We also believe our Guide is an important first step in the process of making undiagnosed illnesses claims a smoother process.

V. Six Other Benefits Issues Related to the Gulf War

1.         The NGWRC urges Congress to amend 38 CFR Section 3.317 and allow claims by U.S. veterans who served exclusively in Israel and Turkey since August 2, 1990.  The DoD defines these two nations as the Gulf War theater, but the VA does not.  This creates confusion in the claims process, as many of these veterans experienced toxic exposures, and some have undiagnosed conditions.  The VA's actions have resulted in unreasonable denials for benefits.

2.         The NGWRC urges Congress to pass legislation to re-classify as “former prisoners of war” approximately twenty U.S. veterans who were taken prisoner by Iraq and held between August 1990 until as late as December 1990, thus making them eligible for expanded VA benefits.  At present, the DoD classifies them as “beleaguered.”  This does not reflect they were held by Iraq's military during the Gulf War as defined by PL 102-25.

3.         The NGWRC urges Congress to extend the part of PL 103-446 calling for medical evaluations of spouses and children.    As the GAO found last year, the VA is slow to implement this program, which expires December 31, 1999.  The NGWRC believes ending the program is premature.  The data generated, in conjunction with recent DoD admissions of multiple, widespread toxic exposures, may prove essential.

4.         The NGWRC thanks Congress for requesting a GAO probe into depleted uranium exposures and Gulf War illnesses.  The NGWRC urges Congress to hold hearings on this matter when the GAO releases their report early next year.  The NGWRC believes many Gulf War veterans may be denied VA benefits for depleted uranium exposures due to the DoD's failure to follow many regulations in place during the Gulf War.

5.         In a related manner, the NGWRC notes with alarm how the Department of Energy apologized to DoE workers for DU exposures.  The DoE offered safety training, healthcare, and compensation to exposed DoE workers.  In stark contrast, there is no verified DoD training for DU hazards, the DoD refuses to consider medical research, there is no known standardized reporting method for documenting or evaluating DU exposures, and there is certainly no compensation.  The NGWRC urges Congress to consider asking the secretaries of Defense, Veterans Affairs, and Energy to comment on this disparity between those who work or worked for the military and those who work or worked for the Department of Energy.

6.         The NGWRC thanks the House for passing the “Gulf War Veterans’ Iraqi Claims Protection Act of 1999” as part of the Embassy Security Act.  The legislation is pending in a House-Senate Conference.  If enacted, this will allow veterans and families to file claims against an estimated $1.45 billion in assets seized from Iraq after Iraq invaded Kuwait in August 1990.  Until a distribution plan is enacted, veterans (many who had their claims denied for undiagnosed illnesses) will not have access to this one-time additional source of benefits.  The NGWRC urges Congress to include the “Claims Protection Act” in any final conference language enacted this year.

VI.            Conclusion

I ask permission to introduce a few documents for the record.  First, our Self Help Guide for Gulf War Illnesses. Second, our Depleted Uranium Exposures Case Narrative.  And, third, a few research articles and some correspondence between the NGWRC and the Administration.

The NGWRC is pleased to be a resource to your staff on issues related to the Gulf War. Chairman, that concludes my comments.  I will be happy to answer any questions.

End

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